Have you been a caregiver for someone you love? Or did a friend or loved one step up to help you? Maybe you went together to doctor appointments. Or did research about a diagnosis. Maybe you helped get billing and claims squared away or sat by a hospital beside and asked a nurse to wash his hands to prevent an infection from being spread.
As healthcare gets more confusing and frustrating, sometimes we have to step in to help those we love get through the system and get the healthcare they deserve.
Please share your story and what you learned to help others, too.
Daughter and Mom Deals with Issues for Many Family Members
Unresolved. Mom died. Dad stopped taking medications unaffordable and due to medicaid errors. Court dismissed case for child who had adverse medication reaction, extreme heath problems, and special e…
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Nurse Advocate Advocates for Her Mother
She was not improving as expected. I asked the nurses if I could see her medications and I discovered a quadruple dose of her blood pressure medicine was ordered by her doctor. I went to the internet…
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Sometimes Advocacy Happens After a Bad Experience, Too
I made a formal complaint to the Virginia Department of Health and they did a one-sided investigation. They did not bother to interview me nor my husband. We were sent a letter telling us that all ou…
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Self Advocating and Helping Loved Ones
Pursued correction to PHI, self assisted. Questioned all medical diagnoses, treatments, or other info for self, child/ren and parents. Being treated with medications that were too strong, ineffective…
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A Sister with No Good Choices
Though I knew my sister would not have wanted to live in the any of the above described scenarios, I knew I had to see if there was any chance of recovery for her. Though the majority of clinicians a…
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A Son Is His Mother's Patient Advocate
The assistance I gave my mother was to compensate for the deficiencies of the medical system. She had different doctors for her different medical problems at different times, but each one had limited…
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A Daughter Advocates for Her Father
I served as a sounding board, clarified information, evaluated risks, recording information and tried to anticipate how my Dad's health would change to help trouble shoot changing living arrangements…
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A Cousin Helps Fix a Misdiagnosis
I insisted she see another Physician.Her urine test results led to a Nephrologist which led to a diagnosis of Glomerular Nephritis. All investigation as to the underlying cause led to a dead end.I in…
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