1. Health
Trisha Torrey

Ticked Off! My Nightmares of Ticks, Lyme Disease and More Controversy

By April 6, 2012

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I've been researching and writing about ticks, Lyme Disease and the highly controversial diagnosis of later stage Lyme Disease for three days.... I've read medical journals, and websites, articles written by experts, and patients, news stories about the expanded tick season we expect this year, the differences among ticks, where they live, and which ones cause Lyme Disease... if it's out there, I have probably read it, taken notes from it, and written about it.... and the bottom line?...

I'm having nightmares about ticks. They find me, they bite my loved ones and me all over, everyone I love has a bullseye rash ... and I'm just soooo tired from being afraid to fall back to sleep because of all those ticks in my dreams.

In short - this whole thing about Lyme Disease and ticks, well, it ticks me off! In fact, because I was doing so much dreaming about those little blood-suckers, I googled "dreams of ticks" - and learned that these kinds of dreams mean something is draining my energy. (I guarantee you it's draining, doing all the research and writing that did it.)

But it's important to put the information out there for empowered patients for a number of reasons:

1. Because most of the United States and much of Canada have experienced such a mild winter, the population, and hunger of ticks is expected to grow exponentially this year. In a typical year, 25,000 Americans acquire Lyme Disease - so we can only imagine how many more will be bitten by Lyme-bacteria carrying ticks this year.

2. Many of the people who have been bitten in the past and now suffer from Lyme Disease symptoms are told their problem is all in their head. We know this is unacceptable for empowered patients - so hopefully they will find support and ammunition among the articles and resources I've put together.

3. Later stage, Chronic Lyme Disease (also called Post-treatment Lyme disease Syndrome, or PTLDS) is highly controversial, as is its treatment. And there's nothing an empowered patient likes to tackle better than something controversial!

So here's a list of what's new in Patient Empowerment and Lyme Disease.

See what you see, let me know if I've missed anything and - if you or a loved one have suffered and/or survived Lyme Disease, please share your story!

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Agree? Disagree?
Share your experience or join the conversation!


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Photo Wikimedia Commons/ Optigan13

April 7, 2012 at 3:23 pm
(1) Bennett says:

The biggest issue with Lyme is sadly misinformation…the next biggest is simple confusion! The disease itself is 9 times out of 10 nothing more than an annoyance. Rarely it can cause moderate acute illness (facial nerve palsy, arthritis, aseptic meningitis). There is unfortunately a post-Lyme syndrome a bit like that of Mono.

One thing you MUST avoid – the so-called “Lyme literate” physicians, who tend to be the LEAST well informed about Lyme, if not downright charlatans. Your best bet when dealing with a difficult case of suspected Lyme is an infectious disease physician. Even the beat pediatrician or internist can be confused by the disease, especially recurrent illnesses.

The worst thing that can happen to a patient with a diagnosis of “chronic Lyme” is the time and treatment wasted on something other than the real cause of their symptoms.

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